Alopecia totalis (AT) is a condition characterized by the complete loss of hair on the scalp. It is an advanced form of alopecia areata
Alopecia Areata
Sudden hair loss that starts with one or more circular bald patches that occurs when the immune system attacks hair follicles and may be brought on by severe stress.
In the picture with the Afro, I was eight years old. I had several bald spots alopecia areata. However, I had enough hair to keep them hidden. As a child growing up in the 70s, I had no clue as to what was going on with my head. Alopecia was not common and rarely discussed in those days. However, I do recall seeing a couple of people who also had some form of Alopecia. I can recall looking at them wondering what was wrong with them not realizing I had the same issue.
Fast Forward, as I reached puberty I didn’t know why I didn’t grow hair in common places such as my legs, my arms, etc. I was so consumed with my hair issues as a young adult that it became debilitating. Which I believed was a contributing factor in the rapid hair loss. I internalized this issue for so many years that my family and close friends had no idea how much I suffered in silence over my hair. It was very depressing.
As I got older I started rapidly losing my hair which than caused alopecia totalis. I started going to doctors that tested me for other autoimmune diseases, such as lupus, etc. I had biopsies done and then was referred to a dermatologist who treated me with corticosteroids, Topical Monoxide, Rogaine and creams. I spent tons of money on travel to get wigs customized before Lace wigs became accessible in the beauty stores.
Hair to me was a symbol of beauty and femininity. I was very insecure & had very low self-esteem over my hair issues for many years. When I turned forty-eight I began the journey of acceptance. I gradually began to expose my bald head. I had people who have been in my life for over 20 years who had no idea I was bald. People would ask me what was wrong do you have cancer. I felt like this autoimmune disorder was so minimal and didn’t feel the need to discuss it when asked. When I turned 50 it was a wrap I didn’t care what anyone thought or asked me about my hair.
Today I sometimes forget I had hair issues until I am out and I get compliments on my head. I question myself often and wonder what took me so long to free myself from the stronghold that nearly took the life out of me. I am sharing my story because there are so many women and children who are living with this autoimmune disorder and are struggling on their journey to freedom. All I can say is. Be free to be your true self from the inside out. We cripple ourselves when we give power to things that consume us. You are not your hair; you are you with or without it. Be the best you that you can on your journey to freedom.
Yours Truly
Bald Bold and Beautiful

What a story! Awesome! I'd say that God put hair on all heads but picked few special ones like you, and me and made us different. I had my first encounter with alopecia at age 10, few months after I lost my father. It was in Romania and a dermatologist prescribed that I get shots under my scalp, shots of Novocain. Within two months the hair grew back wildly. Everything turned back to normal until 1972, two years after I immigrated to the USA with my family. However, this time I didn't go to a doctor. I did visit Romania in 1974 and was given some topical solution which inflamed horribly some glands under my arms. It was very painful. So, I had to chose between my general well being or having hair. I'm so glad that I picked the first. So, I've had alopecia universalis since 1972. I lived all my life without any hair but I lived a good life. I haven't broadcasted that I have no hair but also didn't hide if I was asked. I am a very healthy person, at 68 my blood pressure is 120/60, and other than the antidepressant Cymbalta which I take for depression and fibromyalgia, I don't take any medication. I've been seen without a wig only by my immediate family and a doctor or two. It's not an easy life, that's true, but I thank God every day for the good health He bestowed on me. If I could only have eyebrows and eyelashes, I'd be very happy. I spend too much time in the mirror painting my face every day, other than that, I feel fortunate to have had a good life. Thank you for your story. I only joined these groups myself and I appreciate you sharing your story.
ReplyDeleteYou are very welcome and thank you for sharing yours as well
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